THE JOURNEY OF FAITH AND HEALING OF ONE REMARKABLE YOUNG WOMAN AND THOSE THAT LOVE HER
Saturday, May 13, 2023
I Choose to Go Back
Tuesday, May 2, 2023
Beautifully Imperfect Family
God is perfect in His omniscience, omnipotence, and omnibenevolence. He knows all things, He has the power over all things, but He also has the perfect love for all things. His deepest love is for His children, you and me. Before Earth, I believe that we were able to consider the trials and challenges that we would face. God the Father knew the perfect situation to put us into to allow us to flourish - sometimes in this life, and sometimes not. But more importantly, He knew what we would need to get through the hardest of times. For me, one of those supporting figures is my dear family - near and far, old and young, close and distant, with all of our imperfections, nay, because of all of our imperfections. After all, these imperfections is what makes me able to thrive.
I have been extremely blessed into a unique family situation that very, very few others have ever had. I am the youngest with two sisters with disabilities. This has been exactly what I've needed for various reasons, but I'll get to that in a second, let's back it up first. My paternal grandparents - they were/are the most incredible people anyone had the chance to meet. It saddens me greatly that I can't remember much about them. But my grandma was incredibly loving and generous. She was an incredible baker and she loved to bring joy to others by baking. I remember sitting at their house with my grandpa eating homemade round bread with homemade jam and chocolate milk. She knew how to make the perfect pies and would deliver them to people on a frequent basis. She had the ultimate green thumb, but most importantly, she loved her family. With my grandpa, they built a foundation for an eternal family that would stay close - 2nd cousins, first cousins twice removed, and beyond. My grandpa was a chemistry professor at BYU and he developed debilitating Parkinsons later in life. Yet, he was a man completely without guile. Even as he watched my grandma suffer and die from cancer, he never complained. He never had an ill word to speak about anyone - even after they would steal, lie or cheat. He taught important truths of eternity using fundamentals of chemistry. I never knew my mom's dad because he died before I was born. But I know that he was a hard worker and that my grandma worked the rest of her life to be back with him after she died. That grandma was always the crazy old lady - at least that was my young child interpretation of dementia. But I got to know her on a more spiritual level as she was about to leave this Earth. During this time I came to understand how close she was to our Savior; how she wanted to bring all of His children back to Him in any way she could. She went on 7 (I think) missions - even a proselyting mission in her 80s! - and she did so much family history work. She expressed a desire to be "home," and while others weren't sure what she meant because she was at home, I knew. I knew that she wanted to be home with Father in Heaven because of my same desires.
Then we have my parents. My dad is very smart. He can put things together and synthesize things that no one else can. I got my intelligence and my left brain thinking especially from my dad. My mom has the most sincere and genuine heart. She can listen and reassure in ways that only she can. I often say that my dad is my head while my mom is my heart. When I have intellectual issues, I go to my dad; but when I have big emotions, I go to my mom. She often feels that intellect is more important, because that's what society places higher value to. But I could never be where I am today without her unique influence on my heart and spirit. Not to mention that she helps me with all sorts of other things too, like organizing, cleaning, gardening, cooking, etc. Although, despite all of their traits, the thing that is most beneficial to me is all of the hardship they have endured as a married couple. Having 2 children born with disabilities was anything but easy. Having all of their children be so diverse in ability, personality, spirituality, etc. was also difficult. And then, there was my accident. But I don't believe I could've been any luckier than to have them as my parents. And yes, of course I have siblings to thank for that as well.
My second oldest brother, Nathan has a daughter who developed leukemia when she was only 3 years old. Because of this, my brother does everything he can to better understand what it feels like to have a brain injury on a personal level. My oldest sister, who is 12 years older than me, was born with Rett Syndrome. Rett Syndrome is a genetic anomaly that halts development around 18 months old. Boys don't usually live past 2 years old. It varies for girls but there is no prognosis after they reach 40. My sister is almost 42, which is a miracle in and of itself. But she taught my parents a lot about learning and adapting to unrealized expectations. She taught my parents a lot of patience and empathy. She continues to teach them to love someone beyond their disability. And then there is Tonya. She has her own unique set of disabilities. But, Tonya is the most amazing friend and sister anyone could ever have. We have always been the best of friends - long before we came to Earth - and I believe that we agreed to always have each others' backs when we needed it. In this way, she is my "borka." (It's a word I made up, don't worry about it. The meaning of it is everything that Tonya is to me and everything I am to Tonya.) She still doesn't always understand the brain injury, but she is aware that there are times that I am just sad, frustrated, upset, etc. because my "brain is broken." And in those moments, she is there for me. She will hold me, cuddle me, or bring me a kitty cat when that's exactly what I need. She doesn't know what to say, and that's more than okay. Often times, there isn't anything to say. She loves with all her heart. And I can feel that love.
I also have 2 more wonderful siblings, Aaron and Kate, but the point I'm trying to make is that our Omnipotent Father in Heaven knows exactly what we need and he places trials and tragedies in our lives for a purpose. He knew that I would need a very understanding, compassionate parents and siblings who knew firsthand what disabilities can do to a person. He knew I would need a close extended family to call upon when all of my friends left me. He knew that I would need the gospel in my life, He knew the exact family I would need to be able to endure through something as hard and as terrible as my unique traumatic brain injury.Saturday, January 14, 2023
Lost All Hope
Since the holiday break, I have been a total mess. My anxiety has been through the roof. Nightmares have been constant, and worse and worse. Therefore sleep barely happens and when it does it's anything but restful. I have given up on so many things in life. I've given up on having a head/face that is in any way, shape or form normal. I've given up on having a body that actually works. I've given up on the chance of ever finding love or even a friendship that will last very long. Heck, even having many friends that won't later give me more abandonment issues. I've given up ever feeling happy or just not anxious. I've lost hope. I've given up the idea that the second coming is right around the corner, which is where all of my hope came from. I've given up the idea of ever looking or at least feeling beautiful. I've been forced to give up all of my hopes and dreams and attempt to create new ones. Cautiously I'd try. But I have no hope in anything at all anymore.
I released the podcast hoping it would give me a sense of purpose; feeling like I could help someone. I know that none of the episodes so far would do that, but I have been stifled and unable to produce anything since right before the holidays. What is currently being released was pre-recorded. I can't seem to find it within myself to finish a script. I can't finish anything.
I don't want to do anything. I haven't felt this low in a very, very long time. And I don't know how to pick myself up from this one. When I have been this low before, I didn't have as clear of a head on my shoulders. I thought that suicide was the answer. I know now that wouldn't solve anything, and would only make things worse for those I love. I had backup supports, medications, things I enjoyed, etc. But those things are gone, no longer work, or are no longer enjoyable. I don't have a prescription for this one. I've learned (the hard way) what to do every other time. But this time, today, for the last month, I just don't.
Sunday, January 1, 2023
And My Journey Continues
As the persistent readers of this blog know, I have been blessed to be extraordinarily high functioning for the trauma that I sustained. Particularly blessed in both my intellect as well as my self awareness. Unfortunately, the increased awareness and knowledge makes the loss and grief more painful. I do not believe that this was from the magnificence of medicine, nor by mere accident. But rather through a God of miracles with a specific plan and purpose for specifically me.
Before my accident, I had a mindset of "why not me?" When life hit me hard, I would think about how I was able to handle the challenges with strength, maintain my testimony of the Gospel, and gain the ability to provide empathy for others. In no way did it change the difficulty, but rather it provided perspective and longsuffering. The accident changed that for me however. I felt that I had been dealt a hand that was far too hard. Yet over the years, as I've continued to grieve, to grow, to learn, to receive priesthood blessings, to ponder, to synergize thoughts with others, etc. I have slowly but surely began to return bit by bit to that mindset. I am still not fully there again, but I have felt strength as others go through something challenging and I can often respond with true compassion, love, and suggestions based on my unique real life experience.
I have a real passion for loving and helping others, which is a huge struggle with a TBI. Because of the brain injury, helping people in any "normal" capacity is beyond my limitations. So, being able to help others in empathy, compassion, and suggestions through their own difficulties is the best way I have found to fulfil that desire. After observing this pattern in myself and trying to create some sort of alternative way to increase that fulfilment, I decided to start a podcast.
The podcast will be called "After You've Fallen." My desire is to provide coping skills, managing techniques, and insights to a myriad of challenges an individual can face. I have endured through some extremely difficult physical, mental, emotional, sexual, social, and cognitive issues, and I am still going through them. I wish to connect with others to make them feel like they are not alone, and there is always hope. I have just begun to appreciate the fact that I have been dealing with the post-brain-injury effects for 12+ years. I have recognized that I have learned ways to combat many difficulties that others struggle with for the first time.
Please share this podcast with others you might know. I do not expect every episode to relate to everyone. But, there might be one or two episodes in particular that can reach someone in a dark place. I'm going to be releasing this podcast on (I think) every podcast forum as well as on "After You've Fallen" YouTube. There is an official Instagram page that I'll be updating with each new episode. The first episode will be released on the 9th of January and it will be giving a little bit of background and some of what's in store for future episodes. The second episode will actually be on Thursday the 12th, telling the story of the accident. After that, each episode will be every Monday. Join me on the journey next week!