“I need help…” and I mean what I say. Often people use phrases
such as this when they do not actually NEED help. I want people to understand
that I do not mince words. When I need help, I mean it. I mean it like I am
in a panic attack or almost there!! When someone else says “I need help,”
what they usually mean is actually, “hey, I’d appreciate some help,” or “I could
use some help.” When I would like help, or could use some help, I
say those words verbatim. Educating oneself on this topic can help alleviate
misunderstanding. This exact misunderstanding occurred with one of my family
members. Until this person was educated that “I need help” actually means I
need help, they did not understand the severity of the situation.
THE JOURNEY OF FAITH AND HEALING OF ONE REMARKABLE YOUNG WOMAN AND THOSE THAT LOVE HER
Monday, March 22, 2021
It's All About Semantics
Sunday, March 21, 2021
Validation
I feel the need to address the reality of the physical consequences of an invisible injury. Everything about the physical body is driven by the brain. So naturally, when the brain gets injured, the rest of the body gets injured, even when you cannot see it. The debilitation is so real that any situation can stir emotional chaos within the entire soul. I absolutely cannot emphasize this enough. The most random things can become a trigger for my PTSD, and for the last 10.8 years I have struggled trying to distinguish between the different parts of myself. (additional information in these posts: Dissociative Brain Trauma , No Longer the Victim, The Riley Transformation, New Year, New Understanding, Love Yourself, What is a Traumatic Brain Injury, After 5 Years, It's Time for..., Shannon as a Temple)
My dad helped me write this post. But I had to put in a few cents, so I have inserted where I come in. 😊In regards to my dad’s post, we are NOT trying to make life difficult, we are NOT trying to be self-centered, and we are NOT trying to convey a message contrary of appreciation and love.
Dad: From my observation, a common challenge
with brain injuries is the lack of self-esteem.
This often comes as the individual looks at their current situation vs
their life before the brain injury and sees their deficits. How we respond to their expressions of
frustration, inadequacy, anger or discouragement can have a significant impact
on how they feel about themselves. That
is where the concept of Validation come in.
Validation
is acknowledging that a person’s opinions, experiences, feelings and
expressions are real, and that it is OK for the person to have them. It is not accepting that they are true or
based on fact or that we agree with those expressions. It is simply allowing an individual to freely
express their views without judgement, reprimand or incrimination. Particularly in our society, we have a
tendency to immediately reject and condemn the expressions of others when they
differ from our own. When that happens
to us, we feel threatened and belittled—or in a word, invalidated.
Validation
does not come naturally to most of us. When someone expresses to us that they
are feeling lonely or depressed, we often respond with something like, “Hang in
there, things will get better.,” or perhaps “I know exactly how you feel
because I have felt that way before.”
Although well-intentioned, those comments come across as dismissive of
their feelings or shift the focus onto us and our feelings. A more validating response is a sincere,
heartfelt expression of, “That must be really difficult for you,” or “I can’t
imagine how devasting that must be.”
Those responses offer empathy and understanding, not empty
platitudes. And more importantly, they
allow the conversation to continue and be meaningful.
Shannon insert here In addition to the more
appropriate responses my dad mentioned above, it would be extremely helpful to
then ask, “is there anything I can do?” But please, only ask if you will actually
do something if offered a suggestion. Know that more than anything we just need
someone to listen and we likely won’t have anything else you can do.
Another common response is
justification. “I was super busy/I don’t have enough time” “Try looking at it
from my perspective” “You need to be more sympathetic.” Any of those tells me
that I am not enough. It says that whatever you’re using as an excuse is far
more important than me. It also tells me that you don’t think that I understand
what [busy/pain/stress/school/depression/fatigue/family/guilt/shame/etc] feels
like. But validation is key, also in helping people with depression.
Dad Again, validation does not equal
agreement. One does not have to accept
the premise of another’s feelings to have compassion. We do have to realize that no matter how we
may feel about a given situation, it is real to the other person. Perception is reality, even if it is not
truth. As we sincerely and honestly
validate the feeling and expressions of others, it helps build self-esteem and
places us in a position to help that individual address and manage those
feelings they are having. Validation –
Try it!!
Shannon again: As brain injury survivors, we already feel inadequate because we lost all of our dreams, hopes, desires and most of all abilities - functions of our bodies and emotions. Justifying, dismissing, or simply invalidating communicates that you believe we are inadequate as well. Feelings are always valid, even if they are not justified (or true) the feelings are always valid. But even someone who knows that, like myself, still feels absolutely defeated when someone is redirecting the conversation away from my pain to focus on them. I feel like my feelings don't matter because I don't matter. This is an enormous problem. Please, help us all out - not just those with TBIs, but all of your relationships will improve if you practice a little more validation.
Saturday, March 20, 2021
"You're Not Busy"
The new brain therapy
that I briefly mentioned earlier on is destroying me. It is attacking my
brain via MULTIPLE stimuli which in turn makes my brain angry, my body
exhausted, and tenses every single muscle. I cannot do much of anything after
all of this. Yet, this is something that needs to be done every single day for
2 months to be effective. So, I am running on zero fumes.
But, at the same time, I
cannot stop parts of my regular life. I can’t stop some therapies that although
draining, are extremely beneficial. I cannot stop seeing my dermatologist nor psychiatrist.
I can’t stop taking any of my medications – despite any side effects. I can’t
stop going to my physical therapist, neuromuscular therapist, nor chiropractor
simply because my body needs them now more than ever. Not to mention I’m
getting more “TBIgraines” than usual.
Then the “ME” – what I, as Shannon wants to be doing. Things like going back to school in April and taking one of the hardest classes – so I want to prepare for it by learning as much as I can before the class starts. Additionally, posting about traumatic brain injuries every day in March on my blog. Brain injuries are something I’m very passionate about (for obvious reasons) and there is simply not enough awareness out there.
Those with a traumatic
brain injury are some of the strongest – and busiest – people you’ll ever meet.
Even though we may not look busy from the outside looking in, the inside is
moving faster than you’ll ever know.
Tuesday, March 16, 2021
TBIgraine
My
head was on fire all day yesterday. I say 'on fire' because there is no way to
describe a "headache" after a traumatic brain injury. It is worse
than a migraine, it is lightyears beyond someone's worst headache because it is
a severely injured brain that is pulsing with pain. "The pain [from headaches] originates from
the tissues and structures that surround the skull or the brain." Aka,
headaches are not associated with the actual brain. Migraines on the other
hand, (although the area between headaches and migraines is very grey in
today's world) do stem from the brain according to most medical experts.
They hypothesize that there is disruption in blood flow attacking
neuronal pathways. I have decided that a TBI - migraine should just be called a "TBIgraine."
With a traumatic brain
injury, it doesn't matter where the pain initially originates, the pain quickly
is dispersed and amplified throughout the entire brain, upper neck, and surrounding
tissues, along with other symptoms associated with typical migraines. (For
example, I get nauseous and vertigo.) I cannot explain how a
post-traumatic-brain-ache feels. I cannot express how much pain I’m in when it’s
happening.
The other thing that does not help others comprehend the severity is how much pain tolerance I have grown into. The first few times I got one of these headaches, I was taken to the Emergency Room because I literally thought I could not make it through the next few hours. But having dealt with these for the last 10+ years, I’ve grown accustomed to the pain and I know what I have to do. I live with the ‘insufferable’ pain and I continue to “function” as much as I can. But believe me when I say that does NOT mean that you would ever want to feel this pain. 😊




