It's been a very quiet Sunday. It's truly been a day of rest for Shannon. She has slept most of the day! But this is definitely expected and needed. Tomorrow will begin another rigorous week. We went for a short ride in her wheelchair out to the gardens here at Primary Childrens Hospital. It was so beautiful outside but I could only convince Shannon to stay out for a few minutes. She wanted to get back to her bed.
Shannon also had a visit from President Nilson and President Owen. She was very happy to see them and enjoyed her visit. They brought with them the LONG butcher paper poster that so many youth had signed at youth conference. As soon as they left, Shannon insisted I read them all. She loved it! She loves hearing from family and friends. So all of you youth who signed the poster, know that you made a difference in Shannon's day today!
None of us would be surprised, but she does have a number of headaches. Today the tylenol hasn't worked as well for as long. The doctor said that she will probably have headaches for a long time. She is dizzy/lightheaded when she gets up and that too will be an issue that she will most likely deal with for a long time.
The doctor also decided today, that since Shan was eating so well that she shouldn't be given so much through the tube. Before today, she was on continuous feed, now they have shortened that by 5 hours. This should hopefully make her more hungry and get her to eat even more. I think she will eat more when she doesn't have to eat everything pureed! She did not like her PB&J at all today! It's the little things like this that make me realize how much we all take for granted in life. Being able to eat something as simple as a peanut butter and jelly sandwich is not something most of us think twice about. The good things in life are really the simple things and we usually don't think about them or acknowledge them....until we don't have them. We are grateful to be reminded of the simple things through Shannon's daily progress of getting them back in to her life!